took some time off to get better. My fever dropped, however, my BGs are still a mess and my voice is still non-existent. But, I have to go to work today AND I have to start studying for my exam period. Ugh. I can already feel the stress creeping up with the exams, bah. Also this is Luna the Cat binge-watching Friends with me, teehee.
In the middle of a hypoglycemic insulin reaction at Target, sitting down on a low shelf and waiting to feel better. Low blood sugars for me are very draining. I am eating some low fat York Peppermint Patties and a banana to bring my sugar back up.
I had another shopper take my photo so I could post this, as authentic diabetic bs that diabetics have to endure fairly regularly ( when I was on Lantus, this rarely happened. But now I am on crappy Basaglar insulin and my blood sugars have been rollercoastering from highs of 530mg/dl to 40mg/dl (normal people's blood sugar range is 130mg/dl to 70mg/dl) when I was on lantus, my blood sugar never ever reached 500+, unless I had forgotten a Lantus dose.
I am really tore back in this photo and feeling weak and tired enough to die. Because I have other genetic mutations, my physiological stress response to stressors is extreme and very draining. I still dont feel normal, and I lost my glasses as well because hypoglycemia/insulin reaction is just so draining for me. It even affects my eyes. #hypoglycemia#insulinreaction#lowbloodsugar#diabetic#diabetes#typeonediabetes#typeonediabetic#type1diabetes#type1diabetic#diabetestype1#t1dlookslikeme#t1d#yorkpeppermintpatty@yorkpeppermintpatty#target@targetstyle@target
I remember when my son was diagnosed with #typeonediabetes nearly four years ago and we didn’t have #dexcom yet. We spent the first few weeks relying on #fingersticks (a lot of them!) and a #continuousglucosemonitor was a game changer. There were times when we would leave the house and forget his receiver... and we would go back home to get it. Granted, he was little and couldn’t necessarily tell me how he felt. He is still sometimes #hypoglycemia unaware... but I’ve learned to roll with or without #technology. Today we left for an appointment and I looked at this data shortly after we got in the car... and instantly realized I had forgotten his devices. You can see that his #bloodsugar was trending down, so I did a few things to keep him safe: told him I didn’t have data and to let me know if he felt low, did a fingerstick before we got in the car after the appointment... and when he fell asleep in the back on the way home, I woke him up immediately to ask if he was just tired or if he felt low. He actually said “Maybe that’s why I am sleepy. I think I’m low.” Handed him some #glucose tabs that I always keep stocked within reach in my car door and continued on our way. We were home within a few minutes of that, and DexCom picked right back up.
It’s important to know what to do when #diabetes technology fails, even when it is user error such as leaving it behind!
0 211 minutes ago
Mijn aller eerste hike avontuur: Noorwegen 2016. Waar ik inmiddels onwijs kan genieten van het wandelen en hiken door de bergen, was ik destijds continue bezig met mijn bloedsuikers. Ik had geen flauw idee hoe mijn lijf hierop zou reageren en vond het ontzettend lastig hier dan ook niet non-stop aan te denken. Hoe adembenemend mooi de de natuur van Noorwegen ook is, het was voor mij ontzettend moeilijk hiervan te genieten. Iets wat me tijdens de vakantie tot tranen toe gefrustreerd heeft.
Twee vakanties met tochten door de bergen verder weet ik hoe mijn lijf reageert op uren door de bergen lopen. Twee vakantie met tochten door de bergen verder kan ik nu volop genieten van het wandelen door de bergen en de mooie natuur om me heen. ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀
De reden dat dit me gelukt is, is omdat ik het gewoon ben gaan doen mét diabetes. Eens moet de eerste keer zijn. En die eerste keer is niet makkelijk. Maar je weet pas hoe je lijf op iets reageert als je het gewoon probeert. En door iets te ervaren weet je hoe je er de volgende keer mee om moet gaan. ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀
Ontzettend dankbaar dat ik 2,5 jaar geleden de eerste vakantie mét bergtochten én diabetes ben aangegaan samen met deze twee helden aan m’n zij. Samen ging ik met deze twee helden (en mama die deze foto maakte) naar de top. Inclusief hypostops, tranen van frustraties én inclusief een heleboel begrip voor zowel al die hypo’s als die tranen. ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀
Lieve pap en Steph, jullie zijn mijn helden. Ik ben ontzettend dankbaar voor twee van zulke lieve, leuke én zorgzame mannen aan m’n zij. Fijne verjaardag voor jullie & op naar nog heel veel mooie avonturen samen! 🥂
In the middle of my shopping excursion, I started to feel weak, and so checked my blood sugar and there you go. I absolutely hate having an insulin reaction while shopping, or in the middle of sex. Absolute worst!
I am on a new crappy long acting insulin (Basaglar) that is very unstable and seems to work like NPH or Lente. I used to be on Lantus, but I get my health care through County Hospital and they want to save $ regardless of cost to my health and so ever since I have been on this, my blood sugars have been extreme ( 530 -40 mg/dl). I have been having non stop highs and lows and it wasnt that way with the Lantus. Basaglar is absolute crap...at least for me.
And I will have to petition and make my case in order to be able to get lantus. So I had an insulin reaction today, while shopping at Target, and an even worse one two days ago while at Walmart. I could hardly walk and with lantus. This does not happen. #insulinreaction#diabetic#diabetes#typeonediabetes#typeonediabetic#type1diabetes#type1diabetic#diabetestype1#t1dlookslikeme#t1d#t1diabetes#bloodglucose#hypoglycemia#target@target#basaglar#basaglarsucks#lantus#lantusrules
I hate middle of the night pump site changes for multiple reasons. 1. it’s 1:30 in the morning, i am half asleep but being required to perform a medical procedure of such. 2. i am half asleep but i am needing to decide if i have a bad pump site or maybe missed dosed dinner (or dealing with sickness, a nightmare, stress, anxiety). 3. i have to jab a needle into this sweet boy as he tries to sleep. 4. it reminds me one day he will have to deal with this on his own. 5. He cries out asking what I am doing to him. 6. he keeps asking why over and over while kicking at me in efforts to stop me. But it’s over now and he’s back asleep. I am lucky that usually he will forget it even happened. Usually he thinks he just had a normal night like every other kid. Usually it’s a distant nightmare that’s forgotten in the night. This site only lasted 29 hours. I hate this disease for him (and everyone else living with it). Here’s to tomorrow being a better day. #type1kid#type1warrior#braveboy#pumpsite#insulinpump#insulin#type1#livingbeyond#t1dyoudontsee#lifewithtype1#t1d#mod#animasping#dexcomg6
Par glikozes līmeni asinīs. Jāatzīst, ka reti ir rīti, kad mani iepriecina tik labs, tik normāls glikozes līmenis asinīs. Parasti rīta cukurs ir augstāks - ap 10mmol/l, kas ir uz pusi vairāk kā veselam cilvēkam. Kāpēc cukura līmenis normā ir tik svarīgs? Nu tāpēc, ka tas ļoti tieši ietekmē manu pašsajūtu. Parādīšu divus atšķirīgus rīta scenārijus.
1. Labais rīts, kad rādītājs ir 5,4: - ir možs noskaņojums! Gribas celties, darīt lietas, jokoties, mīļoties, bučot kaķi un tuviniekus, darīt, daudz izdarīt! Ir laba ēstgriba, gribas palutināt ķermeni ar veselīgām brokastīm un rīta vingrojumiem! Domas jau ir dienas darbos, prieka un apņēmības pilnas!
2. Sliktais rīts, kad rādītājs virs 10mmol/l:
- Pamostos jau pirms modinātāja, jo slāpst un gribas čurāt. Atveru acis un jau jūtos nogurusi. Taču atbildība liek celties. Ievadu insulīnu pāris vienību vairāk un gliemeža gaitā sāku riktēties dienas gaitām. Brokastis negribas, jo ir nelaba dūša. Rīta bučas nevienam dot negribas, jo droši vien smako mute. Steidzos izpucēt zobus. Nu var sabučoties. Ko ēst, ko vilkt mugurā? Grūti pieņemt lēmumus. Dzeru ūdeni un gaidu, kad ieradīsies rīta mundrums. Pēc aptuveni 1h, kad insulīns “nositis” cukuru zemāku, sāku justies darbspējīga, arī noskaņojums uzlabojas, taču vēl sevi šaustu ar domu - nu ko es atkal izdarīju nepareizi??? Kā lai no tiem augstajiem cukuriem izvairos?
Man pagaidām nav izdevies saprast, kas notiek pa nakti un kāpēc no rīta ir tā, kā ir. Protams, ar laiku pierod, bet tā nu nav sajūta, pie kā ieteiktu pierast! Es šo mīklu vēlos atrisināt un mosties pēc pirmā scenārija! Ja Tev ur idejas KĀ - padalies, lūdzu! Tas būtu vērtīgi ne vien man, bet daudziem citiem! Lai izdodas pirmais scenārijs! #manadiabētadienasgrāmata#rītacukurs#accucheckinstant#palīdzisev#esivesels#esesmu1#t1d#ideālsrīts#idealmorning
4 91 hours ago
Same same, but different 😋
How about that feature wall though 🔥🔥
1 371 hours ago
Anxiety and diets 💙💙 Diets can create a lot anxious feelings towards food, not just from thinking of foods as good and bad but also social anxiety that prevents us from enjoying eating out and around friends and family. We start to create a barrier between happiness and enjoying time with our friends and family to follow a certain restrictive diet. When I was first diagnosed I allowed my diet to dictate my life, making special meals for myself and telling friends I was too tired to go out for dinner because I was too scared that there wouldn’t be a ‘diet-friendly’ meal on the menu for me. Finding balance in my diet is allowing me to be happy, enjoy time with my friends and family and manage my type 1 diabetes for still a long life but also a happy one.
2 291 hours ago
:( was off to bed “early” (earlier than 12/1am!) but T1D Momma life has other plans. She has had 1 and 1/2 juice boxes.
Which you can see 1/2 a box held her for a little bit 30/35 mins(each dot is 5 mins) then she crashed so gave her a full juice box! Hopefully she steadys out and I can close my eyes by midnight! And hopefully don’t have to open my eyes until my alarm goes in the morning for school. **SOOOO grateful for her dexcom! As I would have checked her when I went to bed seeing her sitting at about 8 been happy. Not knowing she was going down! Not knowing her blood sugars were going to crash :( her body doesn’t alert her when she is low and tonight could very possibly gone horrible! BUT cause of this device that cost $5000+ PER year I was able to treat and she the treatment didn’t work and more needed to be done.
Seriously though, I hate my Diabetes with a burning passion. Have had it for 16 years and it NEVER gets any easier. Finding out though CBD can help manage my depression that comes with having a disease.
I am so proud and excited to help launch Beyond Type 2! Working for Beyond Type 1 the past 3.5 years has changed my life + the lives of so many others with T1D.⠀
While I might not personally have Type 2 diabetes, I know people living with the disease, and I am so happy to be able to share with all the people living with T2D a new home for them - a community and place to connect, resources, inspiration and more. I know this will change the lives of so many living with Type 2, just as it did for me with my Type 1.⠀
I am so proud to work for this organization and so excited to see where this project goes. I am so proud not only of the people who have worked specifically on @beyondtype2 but also the people who built @beyondtype1 to the place we are now. Swipe to meet my fab new coworker T’ara who joined us in 2018 to be the project manager for Beyond Type 2. She lives with Type 2 diabetes and is a kickass woman, already doing amazing things for the Type 2 community. I’m excited to see where this new program goes! Thank you to everyone who made this possible ❤️💉🎉 #BeyondType1#BeyondType2#LiveBeyond#BeyondPowerful#Type1Diabetes#Type2Diabetes#T1D#Diabetes
#Bonbouton Smart Insoles for Preventative Diabetic Healthcare - passively monitors the skin’s physiological signals in order to detect early signs of diabetic foot ulcers before they happen - patented graphene sensors lie under user’s feet, measuring for differences in foot temperature & pressure —indicators of inflammation that may lead to debilitating foot wounds & amputation— so that people living with neuropathy, their physicians and their loved ones are empowered to make timely, effective intervention. In real-time Application keeps patients notified if system detects temperature & pressure discrepancy between left & right foot, which was clinically & scientifically proven to be one of early symptoms for foot ulcers. #Diabetic#neuropathy#footulcer#diabetic#foot#diabeticfoot#NerveDamage#Neuropathy#t1d#t2d#diabetescare#digitalmed#medtech#meddevice#healthmonitoring
I had spent hours researching and working with my doula on my “Birth Plan”. I read articles on delayed cord clapping and instant skin to skin contact. I knew I wanted music playing and just my husband in the room. I wanted to go as long as I could without an epidural and wanted to keep my placenta. I wanted a photographer and had ordered a robe to wear for the big day. I had everything planned, but God let me know that none of that was his plan.
Jocelyn was hours old before I saw her for the first time, and days old before I got to hold her. With everything, we didn’t really get to do much skin to skin.
So the fact that after her bottle, I get the chance to lay with her until she falls asleep gives me so much happiness.
1 133 hours ago
That look when you're waiting on A1C results after three months of turning your diet ON IT'S HEAD! The good news? It's been hell, but TOTALLY worth it! So... my last A1C was disastrous! But, even my doctor was impressed with the effort I've put in to fix it. She says when she changes medications or insulin with a patient, she typically sees a .5% change. I made a full 2 percent point A1C (10.4 to 8.4!) drop in just three months solely through diet change! She asked if I was proud of myself, and I am. I have worked my ASS off for this! We even had to lower my basal insulin rates on my pump because of the overall change, I'm now using less basal insulin. I told her I've accidentally gone almost vegan, and she laughed, and asked how one accidentally goes vegan. I said, I don't know, lol, just tell me if, and if so how, this is sustainable health wise, so she made recommendations on how to manage supplements. Though I'll keep fish on the plate on the doctor's recommendation. So there's the good news! The not so great news, I have Hashimoto's disease and also likely Celiac's (going in for endoscopy ASAP). Apparently, I was diagnosed with Hashi's three years ago. I was in my first month of recovery from alcoholism, and with the fog my brain was still in, I... somehow missed the diagnosis... Sounds crazy probably, but for the most part, my thyroid has been behaving, so we haven't had to attend to it. This does explain a lot of prolonged illness over the past few years, and now I know what to look for moving forward, and we can manage it as it comes along. Getting doubled down with two additional autoimmune diseases in one day may not sound... optimal. But I'm just grateful that I know how to move forward managing my health. I just could not go on like I was, and gratefully, I don't have to. Luckily, I already have a STELLAR endo to work with me on Hashimoto's, so hey, I'm already a step up! Ready to start thriving.
0 173 hours ago
When you’re low at 3am and basal tempt to zero for 1hr30 because you’re too tired to go get some juice - and end up drinking juice at 5am 😬 I sometimes correct my night lows by basal tempting. It works for me most of the times 💙 [not now though 😉].
Do you do the same?
Don’t wait until everything is perfect. If you have a dream, a passion, a mission put it into action RIGHT NOW. The world is moving fast. Don’t miss your chance to do something amazing. I want to contribute to my diabetes community bring awareness, encouragement and positivity. I’m designing T-shirt’s to raise money to fund research to cure diabetes and to provide diabetes medical attention for those globally who can’t get the care they need. I couldn’t wait. It’s not perfect yet. But I’m making it happen. Chase your dreams, don’t wait. Make it happen. What is your favorite color shirt?
Shared her tattoo and story with us.
👇Please read 👇
"My very first tattoo when I turned 18. Freshly done by @buddyptat2s featuring my pump site! I wanted something to represent my diabetes without stamping on my forehead, "I'm a type 1 diabetic!" No, I'm not a huge Nick Jonas fanatic, but the song "A Little Bit Longer" (about his diabetes) really hit home💙"
7 42516 hours ago
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