I hate that I used to hate my hands so much. I hate that I used to hide them in my sleeves. I hate that I wouldn’t raise my hand in class if I didn’t have to. I hate how much I let myself miss out on because I was afraid of being different. I hate that I cared so much about what others might think. I hate that I thought I wasn’t as valuable of a person because of my disabled hands. I love that I love my hands now. .
This is for all of those little kids out there with disabilities or any difference that makes you feel like you’re less than - you’re not. You are incredible. You are worthy of love. You are allowed to be frustrated with your body and be proud of it at the same time. You matter. I see you, you’re not alone, and it will get better. 💛
A typical day in the life of Jessica.🧐 Most often if I'm out and about during the daytime, I'm at Dr.'s appointment. It's not the most exciting life to lead, but it's mine and I'm grateful for whatever life I've been given. It's been my reality for my whole life. My health is a full-time job, I have no idea what life is like for healthy people. 😄
Everyone has there own struggles in life. We need to be wary not to get too wrapped up into picture perfect idealized lives seen on social media. No one can know everything about a person through pretty posed pictures alone. You have to learn the good and bad, be there for someone through thick and thin. When you focus on caring for others your problems don't seem so big. That's why I love this job. It gives me an outlet to care for others, make new friends, support my team financially, help others with their health and so much more!
What you don’t see 👀-> For any picture I post of me “thriving” with chronic illness or “overcoming” my disability, there’s always so much prep work and days to weeks of recovery afterwards going on behind the scenes. After spending last Wednesday advocating on Capitol Hill, I slept 12 hrs overnight, and woke up so debilitated that my mom had to bring me breakfast in bed, followed by me struggling to repack my things. I realized about an hour after we got on the road to return home that I couldn’t tolerate sitting up any longer. Thankfully, I figured out how to secure my wheelchair in my car in a way that allowed me to elevate my legs and recline back. I slept another 2 hrs in the car, bringing me to 14 hrs of sleep for the day and I’ve been mostly bedridden dealing with flare after flare for the week since. None of my perceived “abilities” can happen without the support of meds, assistive devices, braces, my wheelchair accessible vehicle, my family, and my medical team, all things/people often not pictured. My point is, don’t mistake pictures that myself and others post online on our best days as our every day and don’t let them make you feel like you’re not doing enough. Living with chronic illness is difficult and a full-time job on its own. That’s enough, anything more is a bonus. #chronicillness#chroniclife#comparisonisthethiefofjoy
4 291 hour ago
"Tuesday @drphil had #interabled couples on his show and claimed that a nondisabled woman dating a disabled man 'can be his lover or you can be his caregiver, but you can’t be both... it won’t work 100 out of 100 times this won’t work.'" My wife and I are madly in love going on #fifteenyears now. We could not imagine life without the other. She's my best friend, my rock, my copilot, my coparent, and my greatest adventure. You know, like a #marriage . Way to piss off the internet, #drphil 🎉
Always move forward
Going straight will get you nowhere -BJA
1 321 hour ago
It makes me so happy that these signs are becoming more common. Plus I kind of really like the name "accessible toilet" I don't think the term disabled toilet is bad or anything. I just really liked the wording of this #sign .
Some people in the UK can be pretty terrible towards #disabled people, especially with the current government. So I feel this could be a sign that attitudes are changing for the better.
So, 100 out of 100 disabled - able bodied relationships fail do they?
What about disabled - disabled - ablebodied?
I'm the on the in the wheelchair, a medical mongrel 😂(I occasionally get around on crutches, or for a short time, on a pretty cane for wedding photos, because pink crutches show up a little too much there!) Anthony also uses a cane, he has Ulcerative Colitis and a whole host of issues surrounding that. He's on immunosuppressants and even with the cane, can't walk far. Neither of us can work and we are frequently too exhausted to do much outside. We do occasionally get out for fun though.
The final lovely lady in this picture is a healthy, able bodied zumba instructor.
The results are IN! This year’s #WinterPride festival was a huge success, despite some terrible snowstorms and icy conditions ❄️ but heck if queers aren’t a resilient bunch! Here is a snapshot of our 2019 #focusonaccessibility as we aim to make #guelphpride events accessible to more and more people in our communities. Take a look at the results and let us know what you think below in the comments ⬇️💕✨ (Images read: 89% of our events were physically accessible this year, those that were not were partner events held by other organizations in the community / 89% of our events had gender neutral/unisex washrooms, those that did not were offered signage and support in doing so / 57% of our events were open to all ages, from 0-110 years old, that means more ways for our entire community to come together and celebrate! / 60% of our events were sober or dry, more and more each year / 64% of our events were completely FREE, and over 90% had pay-what-you-can options for their fees / 89% of our events were accessible by public transit, because we want everyone to come out and get home safe too / and we hosted more community events specifically for queer and trans people of colour this year💅🏾💕✨)
2 211 hour ago
35lb dumbell squats you say?
Easy peasy! Okay, it was maybe a 5-6 on a scale..but it was an awesome challenge to give myself.
I've been working my behind off trying to get the fitness perfected & now I really need to FOCUS on the nutrition aspect.
While I'm feeling gains and know my abs are hiding just waiting to shine..abs are made in the kitchen! The only way to see success is to have them coexist. Find your balance and stick to it. Results WILL come!
As much as I see particular areas to be self conscious for...I have to stop myself & stand in amazement. Never did I think I'd be this physically strong to lift this amount of weight & more in this fashion, & still keep balance! Take that Spina Bifida!
We're going to be posting a few of these this week.
Our friends Alyssa and Jimmy!
. #Repost@wheellifeinthewheelworld ・・・
“100 out of 100 relationships that involve caregiving fail"- Dr. Phil
In a recent episode those were his exact words and THIS BOTHERS THE HELL OUT OF ME!
Jimmy(my fiancé) and I have been together for almost 6 years now. Engaged for a year and 4 months, and will be getting married in a couple of months. He is my best friend and I'm his! He proposed for a reason!
Dr. Phil aka Mr know it all but has he actually seen people who are in these relationships and who are in love?!
Married, engaged, or just dating, they are IN LOVE!
It's about the person, not the disability! It's about seeing the person for who they are, not the caregiving!
So Dr. Phil, I'd think about what you said!
Repost fr @warrior_from_m.a.r.s We live in a world where people make fun of other people’s misfortunes. Unfortunately, when people are ignorant&don’t understand something, they tend to make fun of it.I won’t put up with anyone making fun of my disability, Multiple Chemical Sensitivity (MCS)! It’s not your place to judge or criticize. Instead, why don’t you ask about my Disability, get educated & try to accommodate my disability?Just like you would if someone was coming to your place&they had a Peanut allergy. I’d like to think that you would do everything possible to make sure they didn’t get exposed to peanuts?! Would you laugh at them because they’re allergic to peanuts? Would you give them peanuts? Would you laugh at their parents if they spoke about their child’s allergy?
My partner who is supportive of me &my MCS disability has been recently laughed at (by so called family) because he is bringing awareness to Multiple Chemical Sensitivity & the health effects from exposures to toxic chemicals and fragrances.
He is trying to educate, inform, & protect his family & friends. Instead of them being appreciative, they ridicule, condemn, and make him the butt of their jokes! How appalling! So...to these wonderful caring people, (who drown themselves in fragrances, when they knew about my MCS disability) the ones who pretend to care about others, but show their true colors & are nowhere to be found when someone is sick or needs help FUCK YOU! To my amazing partner, I’m in awe of your fight for me! Your unwavering support and willingness to bring awareness to #Multiple ChemicalSensitivity is something I never imagined I would find...especially in a person who has never suffered from a chronic illness. You are incredible! To all the incredible people who support, care, & fight for their loved ones who are sick, thank you! 🙏 YOU ARE AMAZING ❤️. #stopjudgingme#stopthehate#fuckthisshit#peoplewhocare#carers#invisibledisability#disabled#disabilityawareness#butyoudontlooksick#whatswrongwithpeople#yourtruecolors#disappointment#disabilitylife#familyisnotalwaysblood#toxicpeople#chronicillnessawareness#chronic
Check out our documentary subject @maggiewhittum and Regan Linton (@reganlinton) in these production stills at @phamalytheatre. Regan Linton is an actor, writer, director, and Artistic Director of Phamaly Theatre Company, a professional nonprofit theatre that re-imagines established works while exclusively casting actors with all nature of disabilities.
Regan is a Denver native, and holds an MSW from the University of Denver and an MFA in Acting from UC San Diego. In 2017, Regan was honored with the True West Award for Colorado Theatre Person of the Year.
Regan is the only wheelchair user to lead a major US theatre company and has become a nationally-recognized advocate for inclusion, performing and presenting across the country and the world.
Professional acting credits include Oregon Shakespeare Festival, La Jolla Playhouse, Mixed Blood (MN), Pasadena Playhouse, and Phamaly, and her writing has been featured in New Mobility Magazine, the Hollywood Fringe, and Chalk Rep (LA).
[Image Description: 1-Regan in her wheelchair with wooden looking wheelchair covers, talking onstage with an actress playing Little Red Riding Hood. 2-Side profile view of Maggie interviewing Regan onstage. 3-Close up of Regan smiling.]
(Image Description: Model mamacaxx stands on the side of a sidewalk, with a Spring style dress and pastel purple handbag. She wears purple heels to match, and vibrant makeup as well.) -
I mean, who doesn’t want @mamacaxx on their feed?! ✨ -
Q: For good #tuesdayvibes , what are your favorite tips/activities you practice to help you get through the week?
A: For us, we like to read new articles up on Cripple Magazine, stalk our favorite disabled influencers and models, and finally, catch up on some Netflix. 😉 -
Bye 👋🏼 Bye rainy, cloudy (yet charming) Paris…
Thank you 🙏🏼 @telethon_france & @eurordis for the wonderful opportunity to attend the 2019 🔬🧬 #EurordisWinterSchool
I am delighted to say that I learned a lot and that I very much look forward to my upcoming initiatives 😊.
Now heading back 🚅💺 to beautiful and sunny 😎 South of France for a few days… just enough time to unpack, take care of the mail & laundry 🧺, (maybe take a few photos 😉), repack and “HOP!…” back on the plane ✈️♿️... .
5k!!! We did it!!! Half way to 10k!!!
Seriously you guys, you have no idea how much this means to me!!!
I started this page in July to inspire others. To help others. And to share my story! And this page is growing rapidly!
Thank you to @wheelchair_rapunzel as well for all your help!
6 2376 hours ago
Please touch! A smart braille display from the Mia and Mile Pinkas Accessible Learning Center is introducing the viewer with the narrow fiscal view that reflects the blind disability .How each small embosses thing become scientifically visually and enhance the feelings
9 46519 hours ago
“100 out of 100 relationships that involve caregiving fail.” -@drphil
This is one of the most ridiculous things I've ever heard. Not to mention completely false and extremely offensive.
It's been 13 years since my boyfriend and I became a couple. He is my main caregiver, but most importantly he is my boyfriend, travel buddy and best friend.
He helps me with all aspects of my life not because he is my carer, but because he loves me and I love him.
So Dr.Phil's statement that #100outof100 relationships that involve caregiving fail is complete BS.
"100 out of 100 relationships that involve caregiving fail." - @drphil
Um ok buddy...🙄 @mr_blizzard and myself have been together for over 2 year and our inter-able relationship is thriving! Relationships are all about balance and communication, regardless of disability. And whilst Nathan may provide more physical support, our relationship is built on the care we have for each other and the ways in which we help each other thrive. Love is love and disability doesn't change that, if you need proof of that just take a peak at all the glorious couples in #100outof100 . #disability#disabled#love#equality#wheelchair#cerebralpalsy#streetstyle#care
19 77118 March, 2019
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